Palliative Care for People Living with Dementia: Case Studies
Expected publication January 2019
Saskia Siderow, MPH, researched and wrote a series of case studies of palliative care programs focused on caring for people living with dementia and their caregivers. The case studies will be published in 2019 as part of a CAPC toolkit for dementia care, accessible to CAPC members. Featured programs are:
The Aging Brain Care Program, Eskenazi Health (IN): The Aging Brain Care (ABC) Program is an interdisciplinary medical model designed to support primary care providers (PCPs) in the specialized diagnosis and longitudinal management of patients with all forms of cognitive impairment and stages of dementia. The program was developed at the Indiana University School of Medicine in Indianapolis, IN.
Palliative Care for Dementia Program, Hospice of the Valley (AR): Hospice of the Valley, Phoenix’s largest hospice provider, has developed a home-based case management and psycho-social support program for people living with dementia and their caregivers.
Family Caregiver Program, Baylor Scott & White Health (TX): Baylor Scott & White Health (BSWH) developed an evidence-based multi-component program to support family caregivers of people living with dementia.
Geriatrics Program for Dementia Care, Baylor Scott & White Health (TX): Baylor Scott & White Health (BSWH) provides home-based primary and post-acute care for people living with dementia and other frail elderly in more than a dozen nursing homes and assisted living facilities in Central Texas.
Caregiver SOS, WellMed Charitable Foundation (TX, FL): The WellMed Charitable Foundation, the non-profit partner of primary care group WellMed Medical Management, provides a range of free services to support and empower family caregivers of people living with dementia and other chronic conditions. Caregiver SOS, serves caregivers of WellMed patients and others in the community with three core services: a coaching program, teleconferences with experts, and stress reduction training.
Staffing Models for Home-Based Palliative Care Programs
Saskia Siderow, MPH, conducted a detailed investigation of staffing models used by palliative care programs serving patients and families in the home and operating under value-based payment. The research surveyed established programs throughout the United States, and informed the development of a program design tool for palliative care leaders participating in CAPC’s Payment Accelerator. The CAPC Payment Accelerator is a an initiative to equip palliative care programs with the knowledge and skills needed to secure sustainable financing for community-based palliative care.
Palliative Care for Population Health Management: Case Studies
December 2017-January 2018
Saskia Siderow, MPH, developed and wrote case studies of palliative care programs successfully operating within alternative payment models: The Mayo Clinic (Rochester, MN), Moffitt Cancer Canter (Tampa, FL) and Integra (RI). The case studies were initially published as part of a CAPC toolkit for integrating palliative care into population health management. The toolkit is accessible to CAPC members only. The case studies, together with a fourth on OSF HealthCare (Peoria, IL), are also available in the Accountable Care Learning Collaborative at Western Governors University, in association with Leavitt Partners (published March 2018).
Mayo Clinic: Generating Value by Integrating Palliative Care into Primary Care Workflows. The Mayo Clinic’s Model for Community Palliative Care
Integra: Palliative Care Education for Care Managers in a Medicare ACO. Integra’s Approach to Improving Value
Moffitt Cancer Center: Palliative Care Integration through Systems Innovation. Moffitt Cancer Center Innovates with Patient-Reported Symptom Screening and Treatment Pathways
OSF HealthCare: Optimizing Technology and Staff for Advance Care Planning
Equipping Oncology Professionals with Core Palliative Care Skills: Research Poster
Saskia Siderow of Ormond House and Allison Silvers of the Center to Advance Palliative Care share the results of their investigation of efforts to instill core palliative care skills at leading cancer institutions. Poster presented at the Patient-Centered Oncology Care meeting, hosted by The American Journal of Managed Care.
Palliative in Practice: Equipping Oncology Professionals with Core Palliative Care Skills
Saskia Siderow of Ormond House and Allison Silvers of the Center to Advance Palliative Care share the results of their investigation of efforts to instill core palliative care skills at leading cancer institutions.
CAPC Webinar: “National Palliative Care Chains and Local Responses”
Third-party community palliative care providers are expanding their national footprints, contracting with health plans in need of solutions for their most complex patients. Saskia Siderow outlined the industry landscape and examined the business models of three fast-growing companies. Co-presenters Rodney Tucker, MD, of the University of Alabama School of Medicine, and Kristofer Smith, MD, of Northwell Health Solutions, discussed how their health systems approached collaboration with third-party providers in their service regions. The webinar is available to CAPC members only.
Palliative Care in Alternative Payment Models: Case Studies
Saskia Siderow developed and wrote case studies of community-based palliative care programs successfully operating within alternative payment models: ProHEALTH Care in New York and Sharp HealthCare in California. The work was conducted for CAPC and Leavitt Partners, and published in the Accountable Care Learning Collaborative at Western Governors University.
ProHEALTH Care: “Delivering Home-Based Palliative Care within an ACO. ProHEALTH Care’s Approach”
Sharp HealthCare: “Providing Early Palliative Care Interventions for Patients with Serious Illness. Sharp HealthCare’s Approach”
“Alternative Payment for Palliative Care Across Settings”
Research poster presented at the Center to Advance Palliative Care Annual Seminar, October 2016
Media training workshops for early-stage researchers
National Palliative Care Research Center retreat in Quebec City, October 2016.
Managed Care Magazine, July 2016.
“Value-Based Payment and Community-Based Palliative Care: Opportunity Knocks”
Palliative in Practice, July 2016.
“America’s Care of Serious Illness”
2015 State-by-State Report Card on Access to Palliative Care in our Nation’s Hospitals
Saskia Siderow was the writer for the CAPC Report Card, providing first drafts and editing services, working with multiple CAPC researchers to synthesize what they had learned into a document that could be used for advocacy in Washington.
Saskia Siderow worked on multiple components of CAPC’s all-new website as the organization rebranded and relaunched with a membership-based model. Work included editing policy positions, language for landing pages and consumer-facing public awareness messages.
2012-2013 and ongoing
Worked on all new content pro bono, with periodic updates.